Home tube feeding challenges

I find it easiest to write from "I'm in the midst of it right now" experience so that's what I'm going to do today. As I mentioned, I have an intern with me this week and I've given her the challenge of simplifying our home tube feeding handouts for clients who either do not speak/understand English or have low literacy skills.

I hop to share our finished handouts on this blog, but in the meantime, here is the link to the home tube feeding resource we are using. From it we are selecting the most important information, simplifying the wording, and using pictures instead of words where possible.  

Tube Feeding at Home: a guidebook for patient, families and caregivers

Comments

[Vincci]

I find it interesting how you talk about tube feeding so often in your blog, especially since in class my professors always mention how BC is more "advanced" in that area, especially in the sense of the role that dietitians play, whereas in Quebec there's more specialization in dysphagia. What do you have to say to that?

[Elaine]

Hi Vincci. Well, I can say a few things in response to your question, but this will have to wait until later because.....

Today, I'm working on the most challenging home tube feeding situation I have ever encountered in twenty years of practice. I'm drawing on everything I know.

At the end of it (and I hope there will be a happy ending for all, especially the patient and family) I will share resources and lessons learned.